Current Perspectives on Autism and Societal Perception

A Report On Autism Advocates and Neurodiversity-Affirming Researchers

The understanding of autism has undergone a significant evolution in recent years, moving beyond a singular focus on deficits to embrace the concept of neurodiversity. This paradigm shift acknowledges the inherent variability in human neurocognitive functioning and recognizes autism as a natural variation rather than solely a disorder. Central to this evolving understanding are the perspectives of autism advocates, particularly those operating outside the framework of Autism Speaks, and neurodiversity-affirming researchers. These groups have been instrumental in reshaping societal views on autism, advocating for acceptance, inclusion, and the recognition of the unique strengths and challenges experienced by autistic individuals. 

This report aims to celebrate the evolving perspectives of key stakeholders regarding autism and the positive ways autistic people are embraced within society. It will highlight their insightful understandings of autism, their constructive critiques of societal perceptions, the significance they place on language and terminology, the power of uplifting media portrayals, and the innovative solutions they propose for nurturing greater societal understanding and acceptance.

Current Understandings of Autism:

Perspectives from Autism Advocacy Organizations

ASAN‘s primary mission is to create a world where autistic people have equal access, rights, and opportunities, enabling them to control their own lives. The organization ensures autistic voices are heard in all autism-related discussions and decisions. To achieve its goals, ASAN engages in policy and legal advocacy, develops accessible educational resources and advocacy tools, and provides leadership training for autistic self-advocates. ASAN believes in supporting decision-making for autistic people, opposing guardianship and emphasizing their right to make their own choices. Embodies the powerful principle of “Nothing About Us, Without Us!”.

The Autism Society adopts a grassroots approach, working diligently to elevate public awareness regarding the everyday realities faced by individuals across the entire autism spectrum. This organization is a strong advocate for the provision of appropriate services tailored to the needs of autistic individuals of all ages, and it serves as a vital resource for the latest information pertaining to treatment modalities, educational strategies, research advancements, and advocacy initiatives. With an extensive network of local and state affiliates, the Autism Society has a significant reach within communities across the nation.

The Asperger/Autism Network (AANE) plays a crucial role in providing a wide range of support and resources to individuals on the autism spectrum, their families, and the professionals who work with them. AANE’s activities encompass the provision of information and education, the development of community connections, and the delivery of direct support and advocacy services. Their offerings include various workshops and training programs, opportunities for peer-to-peer support, individualized coaching and mentoring, and a comprehensive array of informational resources.

The Organization for Autism Research (OAR) is dedicated to applying rigorous scientific research to address the practical challenges encountered by the autism community. OAR’s mission is rooted in using evidence-based science to tackle the social, educational, and treatment-related concerns of self-advocates, parents, autism professionals, and caregivers. Beyond funding crucial research endeavors, OAR is committed to disseminating new and valuable information to as many members of the autism community as possible, with all their research and program initiatives directed towards enhancing the overall quality of life for individuals with autism.

The Autism National Committee (AUTCOM) stands out for its unwavering dedication to social justice and the protection of the civil rights of all individuals with autism. AUTCOM is the sole organization explicitly committed to ensuring social justice for all citizens with autism.

Organization Name	Mission/Focus	Key Activities
Autistic Self Advocacy Network (ASAN)	Advance disability rights with regard to autism; societal inclusivity; equal access, rights, and opportunities.	Policy and legal advocacy, creating educational resources and advocacy tools, leadership training for autistic self-advocates.
Autism Society	Increase public awareness; advocate for services; provide information across the spectrum.	Public awareness campaigns, advocacy for services, providing information on treatment, education, research, and advocacy; local and state affiliates.
Asperger/Autism Network (AANE)	Information, education, community, support, and advocacy for individuals, families, and professionals.	Workshops and training programs, peer support, coaching and mentoring, providing information and resources.
Organization for Autism Research (OAR)	Apply research to address social, educational, and treatment concerns of self-advocates, parents, professionals, and caregivers.	Funding research, disseminating information, enhancing quality of life for individuals with autism.
Autism National Committee (AUTCOM)	Social justice for all citizens with autism; protect civil rights.	Advocacy to protect the civil rights of all persons with autism.
Autism Network International (ANI)	Improve the lives of autistic people who cannot communicate or advocate for themselves; support parents, teachers, and therapists; educate the public.	Advocacy and self-help organization run by autistic people, providing support and education.

General Views on Autism from Advocacy Organisations

Advocacy organizations and neurodiversity-affirming researchers view autism as a natural part of human diversity, advocating for societal understanding, acceptance, and support systems to ensure autistic individuals have equal rights and opportunities. Self-advocacy is highlighted, particularly through the work of ASAN, and Autism Speaks is deliberately excluded, reflecting a significant shift in the autism community.

This shift reflects a move away from more traditional, often parent-driven narratives that may have historically centered on the idea of “curing” or “fixing” autism, towards a neurodiversity-affirming perspective that celebrates and supports autistic identity. The variety of these organizations, each with its specific focus (rights-based advocacy, broad awareness, support networks, research application, social justice, and autistic-led support for non-verbal individuals), illustrates the nature of the contemporary autism advocacy landscape.

Perspectives from Neurodiversity-Affirming Researchers

Neurodiversity-affirming researchers approach the understanding of autism through the lens of the neurodiversity paradigm. This paradigm represents a fundamental shift in perspective, viewing the diversity of human brain function and cognitive styles as a natural and valuable part of human variation. It challenges the traditional medical model that often frames neurological differences, including autism, as deficits or disorders requiring correction. Instead, the neurodiversity paradigm posits that there is no single “normal” or “right” way for the brain to be wired, and that conditions like autism, ADHD, and dyslexia are simply different ways of experiencing and interacting with the world, much like variations in race, gender, or sexual orientation.

The foundational work of Nick Walker has been instrumental in shaping the neurodiversity paradigm. Walker defines neurodiversity as the inherent diversity of human minds and the infinite spectrum of neurocognitive functioning within our species. According to Walker, the neurodiversity paradigm is a specific perspective grounded in the principles that neurodiversity is a natural phenomenon, that a singular “normal” brain does not exist, and that social and power dynamics significantly influence how neurodiversity is perceived and valued within society. Walker’s scholarship also delves into the concept of “neuroqueering,” which explores the intricate connections between subverting societal norms related to neurocognitive functioning and challenging traditional gender norms.

Judy Singer, an Australian sociologist, coined “neurodiversity” in her thesis. Her work focused on autism and Asperger Syndrome, viewing them as socially constructed disabilities shaped by postmodern societal shifts. She compared it to “biodiversity,” arguing that just like diverse life supports a stable ecosystem, neurodiversity is vital for rich human culture. Research shows Harvey Blume first published the ideas of “neurological diversity” and “neurodiversity” and credited them to the online autistic community.

Building upon the foundations of the neurodiversity paradigm, researchers like Damian Milton have developed crucial concepts such as the “double empathy problem”. Milton’s theory posits that the social interaction difficulties often observed between autistic and non-autistic individuals are not solely attributable to deficits in autistic individuals but rather arise from a mutual lack of understanding and empathy between individuals with fundamentally different ways of experiencing the world. He argues that empathy is fundamentally dependent on mutual reciprocity and salience rather than solely on individual cognitive abilities. Research supporting this theory has indicated that autistic individuals often communicate more effectively and experience greater rapport when interacting with other autistic individuals compared to their interactions with non-autistic people.

Other prominent researchers, such as Laurent Mottron, emphasize that while autistic behaviors may be atypical when compared to neurotypical norms, they are often adaptive for the individual. Mottron highlights the potential for negative bias among neurotypical researchers when studying neurodiversity and underscores the critical importance of incorporating neurodiverse perspectives, particularly the lived experiences of autistic individuals, in autism research. His collaborative work with Michelle Dawson, an openly autistic researcher, has been pivotal in challenging assumptions about autism and recognizing it as a natural variation within the human species rather than a problem to be solved. 

Michelle Dawson herself has made significant contributions by challenging conventional perspectives on cognition and neurodevelopment in autism, advocating for a fundamental shift in how autism is understood and supported. Similarly, Megan Cherewick frames autism as a natural difference in brain wiring rather than a disorder, advocating for the development and implementation of neurodiversity-affirming resources and approaches to better support autistic individuals.

Researcher Name	Key Concepts/Theories	Relevant Publications/Contributions
Nick Walker	Neurodiversity Paradigm, Neuroqueering, Pathology Paradigm vs. Neurodiversity Paradigm, Double Empathy Problem	Neuroqueer Heresies: Notes on the Neurodiversity Paradigm, Autistic Empowerment, and Postnormal Possibilities, foundational work on the neurodiversity paradigm and neuroqueer theory.
Judy Singer	Coining the term “Neurodiversity,” Autism as a Socially Constructed Category	Pioneering  thesis, NeuroDiversity: The Birth of an Idea, early sociological work on autism and neurodiversity.
Damian Milton	Double Empathy Problem	Theory of the double empathy problem, research on autistic sociality and the mismatch of salience.
Laurent Mottron	Adaptive Nature of Autistic Behaviors, Importance of Neurodiverse Perspectives in Research	Research highlighting the adaptive nature of autistic traits and the necessity of including autistic researchers.
Michelle Dawson	Challenging Conventional Perspectives on Autism Cognition	Research questioning traditional views on autism and advocating for understanding lived experiences.
Megan Cherewick	Autism as a Difference, Neurodiversity-Affirming Approaches	Research framing autism as a natural variation and advocating for inclusive resources and interventions.

Neurodiversity-affirming researchers view autism as a natural human variation, emphasizing the importance of understanding it from the autistic perspective, celebrating their strengths, and challenging deficit-based views. The double empathy problem highlights the need for mutual understanding in social interactions involving autistic individuals. The historical context of neurodiversity underscores the importance of centring autistic voices in the discussion.

Convergence and Divergence in Autistic Views

A strong convergence exists between autism advocates and neurodiversity-affirming researchers on the fundamental principles of neurodiversity, acceptance, and inclusion. Both groups actively advocate for the acceptance of autism as a natural and valuable form of human variation, firmly rejecting the notion that autism is a condition that needs to be cured or eradicated. 

They share a commitment to promoting inclusion and ensuring equal rights and opportunities for autistic individuals in all aspects of society. A key area of alignment is the shared emphasis on the critical importance of listening to and centering the voices of autistic individuals in research, policy development, and practical interventions. Both advocates and researchers recognize that autistic people possess unique expertise regarding their own experiences and perspectives, which must be prioritized to ensure that research and support efforts are truly effective and respectful.

While a broad consensus exists, potential areas of divergence can be observed. Different advocacy organizations may prioritize different aspects of advocacy, with some focusing more on funding research initiatives, while others dedicate their efforts to providing direct support services or influencing policy changes. Similarly, nuances exist within the neurodiversity paradigm itself, with varying interpretations and emphases on the implications of “disability” within the framework of neurodiversity. 

Ongoing discussions and reflections within the autistic community, such as those articulated by Judy Singer in her later work, highlight the dynamic and evolving nature of the neurodiversity paradigm and its application to understanding autism. Singer, for instance, has expressed concerns about the broadening of the term “neurodiversity” beyond its initial focus on high-functioning autism and Asperger’s Syndrome. She has also introduced the concept of “NeuroRealism” as a counterpoint to what she perceives as an overly optimistic or “Pollyanna” view within the neurodiversity movement, emphasizing the need to acknowledge and address the very real challenges and impairments that some autistic individuals experience.These internal discussions underscore that the understanding and application of the neurodiversity paradigm remain active areas of exploration and refinement within the autistic community.

Societal Perception of Autistic People: Current State

Views from Advocates

Autism advocates consistently express concerns regarding the prevailing societal perceptions of autism. The Autistic Self Advocacy Network (ASAN) is actively engaged in combating the spread of inaccurate and potentially harmful information about autism, indicating a significant concern about the prevalence of misinformation within broader society. ASAN’s critical reaction to the White House’s announcement regarding “Autism Awareness Day” suggests a fundamental disagreement with how autism is often framed and understood by mainstream society and its institutions. This implies that current societal approaches to autism awareness may not align with the self-advocacy perspective of the autistic community.

The National Autistic Society UK has launched the “It’s How You Show Up” campaign, specifically designed to improve public understanding of autism and to educate society on how to better support autistic individuals and their families. This initiative directly addresses the findings of their surveys, which have revealed a “significant gap in understanding” of autism among the general public. The campaign aims to provide the public with concrete ways to demonstrate their support for autistic people, highlighting that simply being aware of autism is not enough; genuine understanding and supportive actions are crucial.

Autism Canada operates on the core belief that every autistic person holds inherent value within society and deserves to be treated with dignity and respect, recognizing their capacity to participate fully in social and civic life. The organization’s efforts are directed towards building a more inclusive society for individuals on the autism spectrum, indicating an awareness of the current societal barriers and misunderstandings that hinder full inclusion.

Personal accounts from autistic self-advocates, often shared through blog posts, provide powerful insights into the everyday realities of navigating a society that often misunderstands and marginalizes them. These narratives frequently recount experiences of encountering stigma, feeling like an outsider or “other,” and the persistent need for genuine acceptance rather than mere tolerance. Advocates often highlight how societal expectations surrounding socialization, communication styles, and general behavior can be profoundly disabling for autistic individuals, who may experience the world and interact with others in ways that diverge from neurotypical norms. Many advocates also critique the prevailing societal perception that autistic people are inherently “disordered” or “broken,” emphasizing that autism is a fundamental aspect of their identity that should be embraced rather than pathologized.

Views from Researchers

Research conducted by neurodiversity-affirming scholars has shed light on the often negative and inaccurate ways in which autistic people are perceived by society. Studies have revealed the presence of derogatory language and the perpetuation of harmful stereotypes about autistic individuals even within scientific literature. For instance, some research has drawn dehumanizing comparisons, such as likening autistic children to great apes or suggesting that language difficulties stem from a “failed domestication” of the human brain. These findings indicate a deeply ingrained bias that can influence not only academic discourse but also broader societal attitudes.

Further research has demonstrated that non-autistic individuals often struggle to understand the perspectives and intentions of autistic people, which can lead to negative judgments and the formation of unfavorable first impressions. When non-autistic individuals find it challenging to connect with or understand autistic people, they tend to like them less and may quickly form negative opinions based on unfamiliar communication styles or behaviors. The phenomenon of autism stigma has also been extensively studied, with research highlighting its significant negative impact on the well-being of autistic individuals.This stigma is often fueled by a lack of public understanding of autism and the misinterpretation of visible autistic traits. Consequently, autistic people may experience social isolation, loneliness, and a diminished sense of social connection.

Studies have also indicated that autistic adults, in particular, are frequently perceived by non-autistic individuals as being more awkward in social interactions, less likable, and even less physically attractive compared to their neurotypical peers. This suggests that societal perceptions are often shaped by neurotypical standards of social behavior and appearance, leading to negative evaluations of those who deviate from these norms. The “double empathy problem,” a key concept in neurodiversity research, further illuminates the complexities of societal perception by highlighting the mutual challenges in understanding and empathizing that occur between autistic and non-autistic individuals. This framework emphasizes that difficulties in social interaction are not solely the domain of autistic people but arise from a lack of shared understanding between individuals with different neurocognitive styles. Finally, research has shown that neurodivergent adults, including autistic individuals, frequently report feeling overwhelmed, misunderstood, disrespected, and unsafe within society, underscoring the significant challenges they face due to negative societal perceptions.

Evidence from Various Sources

Beyond the perspectives of advocacy organizations and researchers, firsthand accounts from autistic self-advocates provide compelling evidence of the current state of societal perception. Recent interviews have captured the experiences of autistic individuals who often encounter societal bias, feel misunderstood, and express a deep longing for genuine acceptance. These personal narratives reveal the frustration of constantly navigating social situations where neurotypical norms are the default, leading to feelings of being “othered” or not belonging. Many self-advocates share stories of having to constantly explain their experiences and challenge preconceived notions about autism.

Blog posts written by autistic advocates further illustrate the prevalence of societal misunderstanding and judgment. These personal reflections often recount specific instances where harmful stereotypes were perpetuated, leading to feelings of invalidation and a negative impact on their sense of autistic identity. The act of “masking,” or consciously and unconsciously suppressing autistic traits to fit in with neurotypical expectations, is a recurring theme in these writings, highlighting the immense pressure autistic individuals often feel to conform to societal norms.

Social media platforms, particularly through the use of hashtags like #ActuallyAutistic, have become vital spaces for autistic individuals to share their lived experiences and collectively challenge dominant societal narratives about autism. These online discussions offer a counter-narrative to often inaccurate or incomplete portrayals of autism found in mainstream media and traditional research. Social media also serves as a crucial platform for autistic individuals to connect, leading to a notable sense of community and providing opportunities for positive representation and mutual support, even though they often disagree. The willingness of autistic individuals to share their personal experiences on these platforms underscores their desire to be understood and accepted by society on their own terms.

Critiques and Concerns Regarding Societal Perception:

Stereotypes and Misconceptions

Both autism advocates and neurodiversity-affirming researchers have voiced significant critiques and concerns regarding the prevailing societal perception of autistic individuals, particularly concerning the widespread presence of stereotypes and misconceptions. A common stereotype that is consistently challenged is the notion that autistic individuals inherently lack empathy. This misconception often leads to the assumption that autistic people are incapable of understanding or responding to the emotions of others, despite evidence to the contrary from both personal accounts and research. Another prevalent stereotype, often fueled by media portrayals, is the idea that all autistic individuals possess savant-like abilities or extraordinary talents. While some autistic individuals do have exceptional skills, this representation is overemphasized and does not reflect the reality of the majority of autistic people.

Many stereotypes about autistic people are inaccurate, including the ideas that they always need lifelong care, lead completely different lives from neurotypical people, are not interested in social interaction, and that autism only affects children.

A fundamental concern within the autistic and neurodiversity communities is the misconception that autistic individuals are “broken” or in need of being “cured”. The neurodiversity movement fundamentally rejects this pathology-based view, asserting that autism is a natural variation of human neurobiology that should be accepted and supported, not eradicated. Advocates emphasize that autism is an integral part of a person’s identity, a way of being rather than something separate that needs to be “fixed”. 

The stereotype that autism has a specific physical appearance is also a harmful misconception, leading to statements like “But you don’t look autistic,” which can be invalidating and hurtful. Additionally, the use of functioning labels such as “high-functioning” and “low-functioning” is widely criticized as being overly simplistic, inaccurate, and ultimately harmful, as these labels fail to capture the complex and varying needs of autistic individuals. 

Finally, the misconception that nonverbal autistic individuals have limited thinking and learning abilities is a damaging stereotype that underestimates the cognitive capacities and potential of those who communicate non-verbally.

Impact of Negative Perceptions

These prevalent stereotypes and misconceptions have a profound and detrimental impact on the lives of autistic individuals. The stigma associated with autism, often stemming from these inaccurate perceptions, can lead to social isolation, feelings of loneliness, heightened anxiety, increased rates of depression, and overall poorer mental health outcomes.Autistic people often experience difficulties in accessing appropriate education and securing meaningful employment due to societal misunderstandings about their abilities and needs, contributing to higher rates of unmet healthcare needs. The risk of experiencing bullying, harassment, and even violence is also significantly higher for autistic individuals, often fueled by negative stereotypes and a lack of understanding.

In an attempt to navigate a society that is not always accepting or accommodating, many autistic individuals engage in “masking” or camouflaging their autistic traits to fit in with neurotypical social norms. This constant effort to suppress their natural behaviors and mimic neurotypical interactions can be incredibly exhausting, leading to burnout, increased anxiety, and a significant reduction in overall well-being. The internalization of negative societal views can lead to what is known as internalized stigma, where autistic individuals come to believe the negative messages they hear about themselves, resulting in feelings of low self-worth, shame, and social withdrawal. Tragically, research has also indicated a reduced life expectancy for autistic individuals, a factor that may be linked to the chronic stress of navigating a world that is not designed to meet their needs, as well as potential disparities in healthcare access and support.

The Significance of Language and Terminology

Advocates’ Stance on Language

Autism advocates place significant emphasis on the importance of language and terminology used when referring to autism and autistic people. The Autistic Self Advocacy Network (ASAN) is a strong proponent of identity-first language, advocating for the use of terms like “autistic person,” “autistic individual,” or simply “autistic”. ASAN believes that autism is an inherent and inseparable part of an individual’s identity, akin to other identity categories such as being Muslim, African-American, or LGBTQ+. They argue that person-first language, such as “person with autism” or “individual with ASD,” subtly suggests that autism is something separate from the person, which they contend is not the case. For ASAN, identity-first language recognizes, affirms, and validates an individual’s identity as autistic, acknowledging their value and worth as an autistic person. The organization also strongly rejects the use of functioning labels like “high-functioning” and “low-functioning,” considering them harmful and not reflective of the diverse strengths and needs of autistic individuals.

While ASAN advocates strongly for identity-first language, other organizations like the National Autistic Society UK adopt a more flexible approach, using both identity-first and person-first language. This reflects a recognition of the diverse preferences that exist within the autistic community. Autism Canada also highlights the importance of respectful language through its “Words Matter Guide,” emphasizing the need for thoughtful and considerate terminology. Many autistic self-advocates and their allies also express a clear preference for identity-first language, with some even finding person-first language to be offensive or belittling. They argue that it can imply that autism is something negative that a person “has,” rather than an integral part of who they are.

Researchers’ Perspectives on Language

Research into the language preferences of autism stakeholders indicates a strong preference for identity-first language among autistic adults themselves. Studies have shown that a significant majority of autistic adults prefer terms like “I am autistic” to describe themselves. This preference is increasingly being reflected in autism research publications, with a noticeable shift towards the increased use of identity-first language.0This trend suggests a growing awareness and valuing of the neurodiversity movement and the importance of autistic representation within research.0However, researchers also acknowledge that the debate surrounding language use is ongoing, and a complete consensus has not yet been reached. Some researchers intentionally use identity-first language to align their work with neurodiversity and embodiment perspectives, recognizing autism as a neurotype and an integral aspect of a person’s being. There is also an argument made by some researchers that the underlying assumptions of person-first language may inadvertently reflect a degree of stigma towards autism.

The Power of Words

The choice of language in the context of autism carries significant weight, with the power to either reinforce or challenge the stigma associated with this neurodevelopmental difference.While person-first language was initially adopted with the intention of emphasizing the personhood of individuals with disabilities, it can inadvertently suggest that autism is something separate from and less desirable than the individual. For many autistic individuals, this separation feels inauthentic and can be perceived as implying that their autistic identity is something to be ashamed of or distanced from. In contrast, identity-first language can be empowering, as it directly affirms an individual’s identity as autistic and rejects the notion that autism is inherently negative. By embracing the term “autistic,” individuals can reclaim their identity and challenge the negative connotations that have historically been associated with it. Ultimately, advocates and researchers agree on the fundamental importance of respecting individual language preferences, recognizing that the most appropriate and respectful way to refer to an autistic person is often to simply ask them what they prefer.

The Influence of Media Portrayals and Public Discourse

Autism advocates express significant concerns about the ways in which autism is often portrayed in the media and the impact of public discourse on societal perceptions. ASAN is actively working to counter harmful misinformation about autism that is frequently disseminated through various media channels. A key critique from advocates is the persistent lack of diversity in media representations of autistic characters, which often focus narrowly on white male individuals, frequently depicting them as possessing savant abilities. This limited portrayal fails to reflect the wide spectrum of autistic experiences across different genders, races, and support needs. We wrote about the impact of media on the infantilisation of autistic adults.

Advocates also raised concerns about the phenomenon of “inspiration p***,” where autistic individuals are presented as being inspirational solely by their existence with autism, often objectifying them for the benefit of non-disabled audiences. Furthermore, there is a perception that media portrayals overemphasize the challenges associated with autism while often neglecting to showcase the strengths, talents, and contributions of autistic individuals. 

Autism advocates stress that skewed media representations of autistic people can reinforce harmful stereotypes and worsen the stigma they already experience. To counter this, they highlight the necessity of autistic individuals’ active participation in crafting autistic characters and sharing their own stories, to promote more authentic and nuanced portrayals in media. ASAN, for instance, provides its expertise to media companies, aiming to support accurate and respectful representations of autism.

Researchers’ Analysis of Media Impact

Research supports the notion that media portrayals have a substantial influence on shaping real-life perceptions and beliefs about autism within the public. Unfortunately, these portrayals can sometimes reinforce negative stereotypes and contribute to inaccurate understandings of the autism spectrum. Studies have indicated that the overrepresentation of savant skills in media can lead to the misconception that most autistic people possess extraordinary abilities, which is not statistically accurate. 

Research suggests that negative portrayals in media can even contribute to the dehumanization of autistic individuals. Conversely, studies have also shown that more positive and nuanced media representations, which highlight the strengths and diverse experiences of autistic people, can lead to more favorable attitudes towards the autistic community. 

While there has been a noted increase in the representation of autistic adults in media in recent years, it still remains limited compared to portrayals of autistic children. Researchers also acknowledge the complex role of social media, which has the potential to both raise awareness and disseminate misinformation about autism, making it a critical area for ongoing analysis.

Calls for Change in Autistic Representation in the Media

Both autism advocates and neurodiversity-affirming researchers are united in their call for significant changes in how autism is portrayed in the media. They emphasize the urgent need for more accurate and respectful representations that truly reflect the diversity of the autism spectrum, moving beyond narrow stereotypes and focusing on the wide range of experiences within the autistic community.A key recommendation is the importance of actively consulting with autistic individuals and experts in the field throughout the media production process to ensure authenticity and avoid perpetuating harmful stereotypes.0 Advocates and researchers also stress the need for media to shift its focus towards highlighting the strengths, talents, and contributions of autistic individuals to society, rather than solely emphasizing the challenges they may face. 

Media must include more diverse portrayals of autistic individuals, avoiding stereotypes and promoting acceptance.

Proposed Solutions and Recommendations for Improving Societal Understanding and Acceptance

Autism advocacy organizations are at the forefront of proposing solutions to improve societal understanding and acceptance of autism. The Autistic Self Advocacy Network (ASAN) strongly advocates for a fundamental shift from mere autism awareness to genuine autism acceptance, emphasizing the importance of understanding and valuing autistic people as they are. ASAN promotes the idea that autism is a natural variation and not something that needs to be “cured”. The National Autistic Society UK has launched public education campaigns, such as “It’s How You Show Up,” aimed at providing the public with practical ways to better understand and support autistic individuals and their families.

Autism Canada focuses its efforts on building a more inclusive society for autistic individuals through ongoing advocacy and the provision of comprehensive support resources. A central theme across advocacy efforts is the empowerment of autistic individuals to become effective self-advocates, enabling them to articulate their own needs and preferences and have their voices heard. Additionally, advocates emphasize the need for creating “autism-friendly” spaces and environments that are sensitive to the sensory and communication needs of autistic people. They also call for policy changes at various levels to ensure that autistic individuals have equal access to crucial resources and opportunities in education, employment, healthcare, and community living.

Research-Informed Recommendations

Neurodiversity-affirming researchers offer a range of recommendations grounded in their findings. A key recommendation is the widespread adoption of neurodiversity-affirming practices across various sectors, including education, therapy, and healthcare. These practices prioritize valuing the inherent differences of autistic individuals and providing individualized support tailored to their specific needs, rather than attempting to “normalize” or “cure” autistic traits. 

Researchers also emphasize the critical importance of educating both the general public and professionals about neurodiversity, working to dispel common misconceptions and promote a more accurate understanding of the autism spectrum. A strengths-based approach is frequently recommended, which focuses on recognizing and celebrating the unique talents and abilities that often accompany an autistic neurotype. 

To create inclusive communities and workplaces, accommodations for neurodivergent individuals are essential. Avoid assumptions, actively seek autistic individuals’ input, and increase autistic-led research focusing on relevant outcomes. Training for non-autistic individuals to enhance understanding and acceptance of autistic communication styles is also recommended.

The Role of Education and Awareness

Education plays a fundamental role in improving societal understanding and acceptance of autism. It is crucial for dispelling the many misconceptions and stereotypes that persist and for raising awareness about the true diversity of the autism spectrum. However, advocates and researchers emphasize that simply raising awareness is not sufficient; the goal must be to move beyond awareness towards genuine acceptance and appreciation of neurodiversity. This requires ensuring inclusive environments in schools, workplaces, and communities where autistic individuals feel valued and supported. Positive and accurate representation of autism in the media also has a significant potential to shape public attitudes in a more informed and empathetic direction.

The Neurodiversity Paradigm and the Double Empathy Problem

The neurodiversity paradigm has had a profound impact on the understanding of autism and its perception in society. At its core, the paradigm asserts that neurodiversity, the variation in neurocognitive functioning, is a natural and valuable aspect of human diversity. This perspective fundamentally challenges the traditional medical model, which has historically framed autism primarily as a disorder characterized by deficits that need to be treated or “cured”. 

Instead, the neurodiversity paradigm emphasizes the importance of embracing autistic identity and recognizing the unique strengths and perspectives that come with neurodivergent ways of being. It frames autism as a form of social identity and a natural part of human diversity, much like variations in race, gender, or sexual orientation. The neurodiversity paradigm has also significantly influenced the growing preference for identity-first language within the autistic community and among researchers. However, it is important to acknowledge that the neurodiversity paradigm is not without its criticisms, and ongoing discussions continue within the autistic community and among researchers regarding its scope, application, and potential limitations.

The double empathy problem, a theory developed by Damian Milton that we have written about previously in relation to parenting, offers a crucial lens for understanding the social interaction challenges experienced by autistic individuals. This theory proposes that these difficulties often arise from a mutual lack of understanding and empathy between autistic and non-autistic people, rather than being solely a result of deficits within the autistic individual. Research has supported this theory by demonstrating that autistic individuals often communicate more effectively and report higher levels of rapport when interacting with other autistic individuals compared to interactions with non-autistic people. The double empathy problem challenges the traditional view of social “deficits” in autism, suggesting that there are often differences in communication styles and social norms that can lead to mutual misunderstanding. 

The double empathy problem highlights the bidirectional misunderstanding in communication between autistic and non-autistic people. This understanding can lead to more inclusive environments and influence professional training. The repeated experience of being misunderstood due to this problem is linked to higher rates of mental health issues in autistic individuals.

Conclusion

In conclusion, the perspectives of autism advocates (excluding Autism Speaks) and neurodiversity-affirming researchers converge on a fundamental understanding of autism as a natural and valuable form of human neurocognitive variation. Both groups strongly emphasize the importance of societal acceptance, genuine inclusion, and the inherent worth of autistic individuals. They advocate for a move away from deficit-based models that seek to “cure” or “normalize” autism, towards approaches that celebrate neurodiversity and support autistic people in living fulfilling lives as their authentic selves. Despite this shared vision, significant challenges persist regarding societal perceptions, including the widespread presence of harmful stereotypes, misinformation, and a lack of deep understanding of autistic experiences.

Autism advocates and researchers emphasize the importance of identity-first language and challenge negative media portrayals. They propose solutions such as public education and inclusive environments,  supported by the neurodiversity paradigm and the double empathy problem. These efforts aim to create a more accepting society that values neurodiversity.

References

Autistic Self Advocacy Network. https://autisticadvocacy.org/about-asan/what-we-believe/}

National Autistic Society. https://www.autism.org.uk/ 

Autism Canada. https://autismcanada.ca/

Walker, N. (2019). The neurodiversity paradigm. {url: https://neuroqueer.com/neurodiversity-some-basic-terms-definitions/}

Singer, J. (2017). Neurodiversity: The birth of an idea. {url:(https://www.amazon.com/NeuroDiversity-Birth-Idea-Judy-Singer/dp/064815470X)}

Milton, D. E. M. (2012). On the ontological status of autism: the ‘double empathy problem’. Disability & Society, 27(6), 883-887. {url: https://doi.org/10.1080/09687599.2012.710008}

Botha, M., & Cage, E. (2022). Autism research is in crisis: A mixed method study of researcher’s constructions of autistic people and autism research. Frontiers in Psychology,1 13, 1050897. {url: https://doi.org/10.3389/fpsyg.2022.1050897}

Hull, L., Petrou, A., Goddard, L., Hing, S., & Mandy, W. (2021). Sex differences in camouflaging in autistic adults. Autism, 25(7), 1819-1832. {url: https://doi.org/10.1177/1362361321993730}

Kelly, R. E., Howes, L., Hussain, S., & Ring, H. (2022). “It’s like I’ve found my people”: Autistic women’s experiences of social media. Autism, 26(8), 1974-1985. {url: https://doi.org/10.1177/13623613221084734}

Bottema-Beutel, K., Kapp, S. K., Lester, J. N., Sasson, N. J., & Hand, B. N. (2021). Avoiding ableist language: Suggestions for autism researchers. Autism in Adulthood, 3(1), 18-29.2 {url: https://doi.org/10.1089/aut.2020.0014}

Stevenson, J. L., Harp, B., & Gernsbacher, M. A. (2013). Infantilizing autism. Disability Studies Quarterly, 33(3). {url: https://dsq-sds.org/article/view/3703/3240}

Jones, M., Harwood, V., & Petrou, A. (2023). The portrayal of autistic people in film and television: A systematic review. Review Journal of Autism and Developmental Disorders, 10(3), 383-401. {url: https://doi.org/10.1007/s40489-022-00336-4}